The Official Website of the Acid Maltase Deficiency Association

It is difficult to say what is impossible for the dreams of yesterday are the hopes of today and the reality of tomorrow. - Robert H. Goddard

Conference Report Available for 2011 AMDA/IPA Patient and Scientific Conference

On October 7-9, 2011, 150 Pompe patients and their families, scientists, doctors, and industry representatives from around the world gathered in San Antonio, Texas for the 2011 AMDA/IPA Pompe Patient and Scientific Conference.  Over the course of this weekend, there were twenty-two presentations on topics such as enzyme replacement therapy, gene therapy, muscle regeneration, newborn screening, exercise trials and the IPA/Erasums Survey (to name a few). 

To download the Conference Brochure, which includes Presenter Biographies and Abstracts, please click here.

For the Conference Report, please click here.

We are also pleased to announce that Conference DVDs are available for purchase.  To order your DVDs, please send an email with your mailing address and the number of copies you would like to (JavaScript must be enabled to view this email address).  DVDs are $60 (USD) per set (this includes shipping within the United States–additional shipping costs for orders outside the US will be assessed on a case-by-case basis).  To make a payment via Paypal, please click on the “Make a Donation” button on the right-hand side of the AMDA homepage.

Disclaimer: The AMDA does not endorse any of the products, medications, treatments or information reported herein. The website and its contents is intended for informational purposes, only. We strongly advise that you discuss all medications, treatments, and/or products with your physician.

Address: AMDA PO Box 700248
San Antonio, Texas 78270 USA