The Official Website of the Acid Maltase Deficiency Association

It is difficult to say what is impossible for the dreams of yesterday are the hopes of today and the reality of tomorrow. - Robert H. Goddard

Editorials

Changing Lives—UTSA Sombrilla

By: Jason B. Johnson posted on: July 20, 2009

Published in University of Texas San Antonio’s Sombrilla Magazine: Summer 2009

Tiffany House was just 11 when she was diagnosed with a rare and often fatal disease called Acid Maltase Deficiency. Doctors told her she wouldn’t live into her 20s.

Now 26, House has been called a medical marvel, bucking her prognosis and leading a full life. She is president of the Acid Maltase Deficiency Association, created in 1995 by her parents, Randall and Marylyn House, to assist in funding research on her disease, often called Pompe disease, and to promote knowledge of Pompe. She is also a board member of the International Pompe Association and is the patient representative to the Food and Drug Administration, fighting to extend treatment possibilities to all patients.

To read full article, please visit UTSA Sombrilla

Disclaimer: The AMDA does not endorse any of the products, medications, treatments or information reported herein. The website and its contents is intended for informational purposes, only. We strongly advise that you discuss all medications, treatments, and/or products with your physician.

Address: AMDA PO Box 700248
San Antonio, Texas 78270 USA