AMDA TELECONFERENCE PROGRAM
The AMDA Teleconference Program facilitates the exchange of information between the Pompe patient community and professionals that have expertise in the field.
- FDA Expanded Access Program
Speaker: Richard Klein, FDA Office of Special Health Issues
Date: March 18, 2010 at 1:30 pm cst
To download presentation slides, please click here.
To listen to audio recording, please click here. - Expanded Newborn Screening Teleconference
Topic: How to advocate for newborn screening initiatives in your state
Speakers: Bob Evanoski from the Evanoski Foundation
Date: Monday, January 21, 2008 at 7:00 PM CST - Amicus Conference Call
Topic: Amicus Pompe Summit
Speaker: Mark Lyles, M.D., Jayne Gershkowitz, and Tina Sellers from Amicus
Date: Monday, April 14, 2008 at 7:00 PM CST - Zystor Therapeutics Inc Conference Call
Topic: Glycosylation Independent Lysosomal Technology (GILT)
Speaker: Dr. Jonathon LeBowitz
Date: Wednesday, January 28, 2009 at 7:00 PM CST - Second Teleconference on Insurance Issues
Topic: Getting Insurance Coverage for a Newly Approved Drug
Speaker: Christin Engelhardt from the Health Assistance Partnership
Date: Tuesday March 21, 2006 at 7:30pm CST
Download Powerpoint Presentation - Second FDA Teleconference (Part 1)
Speaker: John Hyde, M.D., Medical Team Leader at FDA
Date: Thursday, January 27th, 2005 8:30 pm EST
Download Transcript - Second FDA Teleconference (Part 2)
Speaker: John Hyde, M.D., Medical Team Leader at FDA
Date: Thursday, January 27th, 2005 8:30 pm EST
Download Transcript - Special Trust Funds
Speaker: Theresa Varnet
Date: Thursday, October 28th, 2004 8:30 pm EST
Download transcript - Gene Therapy
Speaker: Dr. Barry Byrne
Date: Tuesday, August 31st, 2004 8:30 pm EST
Download Transcript - The Prevention of Respiratory Complications in Pompe's Disease
Speaker: Dr. John Bach
Date: Monday, June 21, 2004 8:30 pm EST
Download transcript - Gene Therapy
Speaker: Dr. Andrea Amalfitano
Date: Tuesday, March 23rd, 2004 8:30 pm EST
Download Transcipt