The Official Website of the Acid Maltase Deficiency Association

It is difficult to say what is impossible for the dreams of yesterday are the hopes of today and the reality of tomorrow. - Robert H. Goddard

Discovering that you or a family member has Pompe Disease can be a frightening time. People may become depressed, or have trouble coping with this news. Even after coming to terms with the news many people may still feel alone–like no one else really understands what they are going through.

In times like these it helps to talk to someone who’s “been there,” or who is currently going through the same thing.

Therefore, the AMDA works to connect people who want to share their experiences or talk to other patients and/or family member’s of patients.

If you are interested in talking to someone, or if you want to be involved in our Mentoring/Connecting Program, please contact Marsha Zimmerman at

We have patients or family members ready and willing to talk to you. You don’t have to feel alone.

Disclaimer: The AMDA does not endorse any of the products, medications, treatments or information reported herein. The website and its contents is intended for informational purposes, only. We strongly advise that you discuss all medications, treatments, and/or products with your physician.

Address: AMDA PO Box 700248
San Antonio, Texas 78270 USA