The Official Website of the Acid Maltase Deficiency Association

It is difficult to say what is impossible for the dreams of yesterday are the hopes of today and the reality of tomorrow. - Robert H. Goddard

2014 AMDA Pull for Pompe

Posted on: February 23, 2014

On Saturday April 5, 2014 the AMDA will host the Fourth Annual Pull for Pompe at the National Shooting Complex in San Antonio, Texas.  Over the last three years over $380,000.00 (USD) has been raised through this event and all proceeds go towards the AMDA Research Grant (please see Page 10 for Updates from Prior Grant Recipients). It is a truly family-friendly event, and for a worthy cause.

While the Pompe Community is fortunate to have a treatment, we do not yet have a cure.  In addition, there is still a pressing need to better understand the basic science of Pompe disease and to investigate and develop new techniques for disease management.  We are making great strides forward, but there is still more research that needs to be done, and it is through fundraisers such as the Pull for Pompe that the necessary money is raised for this important research.

Click here for an event flyer!

Disclaimer: The AMDA does not endorse any of the products, medications, treatments or information reported herein. The website and its contents is intended for informational purposes, only. We strongly advise that you discuss all medications, treatments, and/or products with your physician.

Address: AMDA PO Box 700248
San Antonio, Texas 78270 USA