The Official Website of the Acid Maltase Deficiency Association

It is difficult to say what is impossible for the dreams of yesterday are the hopes of today and the reality of tomorrow. - Robert H. Goddard

AMDA to Celebrate First International Pompe Day!!

Posted on: May 04, 2014

Update: May 4, 2014

THE AMDA TO CELEBRATE THE FIRST INTERNATIONAL POMPE DAY WITH COMMEMORATIVE BOOK

April 15, 2014 marked the International Pompe Association’s (IPA) first annual International Pompe Day.  In honor of the First International Pompe Day, the Acid Maltase Deficiency Association (AMDA) is creating a Commemorative Book capturing the international Pompe Community’s efforts to recognize this special day and to show the world how “Together We Are Strong!”

Individuals, families, communities, and organizations celebrated the first annual International Pompe Day in many diverse, creative and exciting ways.  Some people took to Facebook and asked all of their friends and family to change their profile pictures to the International Pompe Day Logo; some recognized the day by taking group photos at events they hosted; some submitted poems and artwork to the International Pompe Day Art Contest; some uploaded photos of what “Together We Are Strong” means to them to the International Pompe Day Photo Gallery; some families and organizations used the day as a launching point for treatment, disease awareness or newborn screening campaigns or fundraisers.

The ways to celebrate and recognize International Pompe Day and to show how “Together We Are Strong” are as unique and diverse as Pompe disease!

The goal of the AMDA’s Commemorative Book is to capture and preserve as many of these international activities and celebrations as possible–and we need YOUR help! Please contribute a submission to show how you celebrated International Pompe Day or a submission that represents “Together We Are Strong!”  Submissions should be sent (along with the Submission Form) to (JavaScript must be enabled to view this email address)

The Deadline for submissions is June 1, 2014.

If you have any questions, please email me at (JavaScript must be enabled to view this email address).  Remember: “Together We Are Strong!”

Thank you.

Tiffany House
AMDA President
IPA Vice-Chair

• For more information on the first annual International Pompe Day: www.worldpompe.org/events/international-pompe-day

LET’S SHOW THE WORLD HOW TOGETHER WE ARE STRONG!!!

Update February 23, 2014

Please visit the International Pompe Day Shop at www.cafepress.com/InternationalPompeDay to purchase your official International Pompe Day Merchandise! The Shop is hosted by the Acid Maltase Deficiency Association and proceeds will go towards Pompe Disease Awareness Acitivities.

Disclaimer: The AMDA does not endorse any of the products, medications, treatments or information reported herein. The website and its contents is intended for informational purposes, only. We strongly advise that you discuss all medications, treatments, and/or products with your physician.

Address: AMDA PO Box 700248
San Antonio, Texas 78270 USA