AMDA to Celebrate First International Pompe Day!!
Posted on: May 04, 2014
Update: May 4, 2014
THE AMDA TO CELEBRATE THE FIRST INTERNATIONAL POMPE DAY WITH COMMEMORATIVE BOOK
April 15, 2014 marked the International Pompe Association’s (IPA) first annual International Pompe Day. In honor of the First International Pompe Day, the Acid Maltase Deficiency Association (AMDA) is creating a Commemorative Book capturing the international Pompe Community’s efforts to recognize this special day and to show the world how “Together We Are Strong!”
Individuals, families, communities, and organizations celebrated the first annual International Pompe Day in many diverse, creative and exciting ways. Some people took to Facebook and asked all of their friends and family to change their profile pictures to the International Pompe Day Logo; some recognized the day by taking group photos at events they hosted; some submitted poems and artwork to the International Pompe Day Art Contest; some uploaded photos of what “Together We Are Strong” means to them to the International Pompe Day Photo Gallery; some families and organizations used the day as a launching point for treatment, disease awareness or newborn screening campaigns or fundraisers.
The ways to celebrate and recognize International Pompe Day and to show how “Together We Are Strong” are as unique and diverse as Pompe disease!
The Deadline for submissions is June 1, 2014.
• For more information on the first annual International Pompe Day: www.worldpompe.org/events/international-pompe-day
LET’S SHOW THE WORLD HOW TOGETHER WE ARE STRONG!!!
Update February 23, 2014
Please visit the International Pompe Day Shop at www.cafepress.com/InternationalPompeDay to purchase your official International Pompe Day Merchandise! The Shop is hosted by the Acid Maltase Deficiency Association and proceeds will go towards Pompe Disease Awareness Acitivities.