| Other Webs of
Interest: Coalition of World Pompe
Organizations Pompe Center of the Erasmus Medical Center Rotterdam, the Netherlands Genzyme's Pompe Community Website Pompe Registry -- an ongoing, observational database that tracks natural history and outcomes of patients with Pompe disease (new) Fight Pompe -- Juan Magdorag's Blog detailing his fight against Pompe's Disease Technical explanation of Acid Maltase Deficiency,
Pompe's disease, International Pompe Conference 2003--Germany Pompe disease explained in layman's terms by Kevin
O'Donnell, Ph.D. VSN-Dutch Organization- Pompe's Disease Canadian Association of Pompe (new) AGSD-United States VML-French Lysosomal Storage Disease
Organization A.F.G-French Association for Glycogen Storage (French only) German Glycogen Storage Disease Association Australian Organizations Glycogen Storage Disease Association in Spain Pompe Association in Japan Glycogen Storage Disease Association in Italy Gezinus Wolters' Personal Homepage (Dutch and English) Information on Ten Glycogen Storage Diseases INFORESP -- Information service for respiratory care Genetic and Rare Diseases Information Center
-- Contact if you have questions about genetic
or rare diseases |
© AMDA, Acid Maltase Deficiency Association, Inc. 1997
