info@amda-pompe.org

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It is difficult to say what is impossible for the dreams of yesterday are the hopes of today and the reality of tomorrow. – Robert H. Goddard

Our Mission

The Acid Maltase Deficiency Association’s driving force lies in its efforts to advance research, improve care, and ensure early diagnosis for individuals and families affected by Pompe disease. Founded by the House family and guided by individuals living with Pompe disease, AMDA works through deep collaboration with global experts, industry, and policymakers to translate science into informed, compassionate support for the Pompe disease community.
LEARN MORE ABOUT AMDA

What is Pompe disease?

Pompe disease is one of a family of 49 rare genetic disorders known as Lysosomal Storage Diseases or LSDs. Pompe disease is also known as Acid Maltase Deficiency or Glycogen Storage Disease type II.

Research

Webinars

News

Conferences

If you are a newly diagnosed patient, please email info@amda-pompe.org and someone will return your message within 24-48 hours.

Recent News

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Check Back Soon for Upcoming Webinars

We don’t have a webinar scheduled at the moment, but more exciting sessions are on the way! Check back soon for details, or sign up for our newsletter to be notified when new webinars are announced.

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Upcoming Talking With Your Pompe Peeps Session

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Your generous contribution will go a long way into improving the quality of life of Pompe Disease Patients worldwide. Donations go towards Pompe Disease Research.

 Acid Maltase Deficiency Association

GET INVOLVED

Your generous contribution will go a long way into improving the quality of life of Pompe Disease Patients worldwide. Donations go towards Pompe Disease Research.

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If you are interested in learning more about Pompe Disease and would like to make a contribution in support of necessary research, please contact us at:

info@amda-pompe.org

THE AMDA

PO Box 700248

San Antonio, Texas 78270 USA